tag:blogger.com,1999:blog-2608274933866038080.post743424854501156866..comments2023-03-29T08:33:05.232-07:00Comments on SEEKING EQUILIBRIUM: GRACERosemary Leehttp://www.blogger.com/profile/18413577350795054949noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2608274933866038080.post-92030959421497167892010-05-17T09:33:04.720-07:002010-05-17T09:33:04.720-07:00What a poignant, beautiful post - even in your fru...What a poignant, beautiful post - even in your frustrations, heartache, body-ache, soul-ache...<br /><br />"small prayer"...perhaps one God loves best. An invitation, a reaching for Him...<br /><br />If we can make these trials count for something, I think the growth of soul is the most prized of goals.<br /><br /><br />Paxhiddenliveshttp://mycfslife.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-2608274933866038080.post-19863470296869583712010-05-16T04:55:14.568-07:002010-05-16T04:55:14.568-07:00Hi Rose,
I hope this finds you in peace. I'm ...Hi Rose,<br /> I hope this finds you in peace. I'm very sorry your daughter had to deal with the dismissal. It is horrible. Over the years and all the specialists, some good, some okay, and then others are absolutely worthless and horrible -- I've seen times where I was nearly suicidal walking out of a doctor's office. Living near a medical school, you get the best and apparently the worst too.<br /> Once I went to a memory specialist. My family doc had referred me only to get me into the department so she hadn't looked into the type of doc she had referred me to. Well, turned out he worked with severe brain injured patients but he found me interesting, like an animal at the zoo. He brought in five of his students as he was a teaching doctor. They all stood around, talking about me as if I wasn't even sitting in the chair in the same room with them. They each had their own high opinions (trying to impress their professor doctor) -- not one of them treated me like a human being. One of them said, "some people take the medications you take because they like the feeling." I told her the particular one she spoke of made me sick and never made me feel good. I sat there for a while, observing this scene. I was told I should choose one health issue to address and let the others go -- do one at a time. These docs didn't know squat about the illnesses I have.<br /> I finally felt enough anger that I told them what I thought of thier standing arouund me literally in a circle, ignoring me, especially the young resident from the psychiatric department. All he did was watch my body movements and literally thought he could diagnose me with something, I guess whatever he had been studying that week but I certainly didn't give him a chance.<br /> I got a five page letter the teaching doc wrote about our visit. He had my age and name wrong. He had lots of facts wrong. The most interesting part was that he wrote that the "patient had unusual sadness after the death of her dog and admitted that choosing her day had been one of the hardest things she had ever had to do." <br /> I'd asked him if he owned a dog and when he said no, well, I knew he and I probably wouldn't get on so well together.<br /> Finally I saw a fibromyalgia specialist, the day before he retired and moved to the mountains of NC. He is still practicing. I wish your daughter could find someone like him because one visit with him, which lasted about two and a half hours, really did change my life. Finally, someone explained fibromyalgia to me. Finally someone understood. Finally, a doctor treated me like a human being in pain with severe fatigue. <br /> After I saw those horrible doctors, I got inot the habit of introducing myself to doctors, asking them a little about themselves, which makes some uncomfortable but the good ones don't seem to mind. I also tell them that I am no easy patient and ask if they are up for the challenge of treating a patient like me.<br /> We really shouldn't have to defend ourselves in the medical community, but we do and we must.<br /> Best wishes and good luck to your daughter.<br /> dogkisses and hugs to you, my friend.<br /> ps I write today from a tiny but cool new blue computer.Anonymousnoreply@blogger.com