Showing posts with label AV shunts. Show all posts
Showing posts with label AV shunts. Show all posts

Monday, July 1, 2013

IT'S CALLED CLASS AND COURTESY






They've just released a major break though in the fight.
They're besieged by requests for comments.
They graciously responded.


I guess I shouldn't say "they."  After writing the post about the breakthrough I decided to go to the website and ask a couple of questions. 

I identified myself and posed my questions. I mentioned that I wrote a blog and tried to keep up on the latest research. I then signed off respectfully with my name and the name of my blog. 

I hoped I'd hear but I really didn't think that I would.
I was wrong.

The reason I didn't hold out hope was I tried this before. Not with this company but with the writers of a Fibromyalgia blog. I reached out and was basically told that since I wasn't published they wouldn't be responding. 

Isn't that a sweet thing to do? 

When I reached out to this company I still had visions of these research scientists and doctors not wanting to have anything to do with a lowly blog writer. What I encountered was a heartfelt email. Wrong. Make that two emails. 

One email was documents that I could feel free to share and the other was a response to my questions and a wish for continued well being. Yes, they have tons of people writing to them, sharing their stories. Are they annoyed by this? No. They are gracious and willing to share what they know. They honestly want to make the suffering of Fibromyalgia and chronic pain go away and work tirelessly to that end goal.

I truly believe they're on to something. I didn't realize that trauma can cause an increase in the nerve endings. Genetics can also be involved.  

What do I like the most?

The fact that he wanted Fibromyalgia sufferers to take comfort in one fact.

This isn't all in our heads.

It's real.




Tuesday, June 25, 2013

IT'S ALL IN THE PALM OF MY HAND






I keep reading the study.
Over and over again.
Is it that simple?
Can it be that simple?
I have questions.


It seems that the nerve endings in the AV shunts in the palms of our hands hold the secret of Fibromyalgia. The AV stands for arteriole-venule which, up until now, just regulated blood flow. Now it seems that an over abundance of these nerve fibers are the source of our pain.

It's possible.
Anything is possible.

But this brings questions. Does that mean that these excess nerve fibers were a genetic anomaly? If that is the case then are they able to remain dormant and then be triggered by an illness or trauma?

Most of us can pinpoint when the pain started. For me, it was trauma. I don't understand....did the trauma cause my palms to grow excess nerve fibers or were they there and dormant. Well, wait....if they were dormant I wouldn't be able to feel anything, would I?

On the other side.....I can always feel a flare coming on because it starts with my hands. 

They summarize that the blood flow is responsible for the muscular achiness and pain. The fatigue is from a build up of lactic acid and inflammation. It sounds like that triggers the brain going a little haywire.  These shunts could be keeping blood flow from reaching deep into the muscles. As far as the brain going haywire....we all know what happens then.....

We can't sleep.

The interesting thing, to me, is that these shunts are critical for thermal regulation and our metabolism. It's that why some of us have heat or cold intolerance??  As far as our metabolism goes......could it be why this is so closely intertwined with our thyroid?

If this is the case why do some medications work for some people and not others? What about all the symptoms. Can it all be due to excess sensory fibers in our hands??

I'm thinking about this.

But I still have questions.

I think this bears watching.....

but now, when I feel a flare coming on......

And I'm rubbing my hands.......

I'll take notice.