Tuesday, October 29, 2013



I wonder if technology has been good to us as a society. In one respect we have the ability to be incredibly well-informed. On the other hand, it makes us incredibly apathetic.

Or do we really just not care anymore?

Have we become so well-informed that we are jaded to the process? Is it because we realize that we have no control over the powers that be? I grew up in the 60's and 70's and we believed we could implement change if we were loud enough or organized enough. We cared so much about social issues.  Have we seen so much that we don't believe it anymore? Do we have access to too much information?

That's difficult to believe.
And I don't want to believe it.

There are people that devote their lives to the cause. Their work causes them sleepless nights and subsequent crashes of fatigue, pain and migraines. The people that put together organizations and forums for our benefit do this without thought to themselves. They want a place where we can go for help and to guard us against medical injustices. They hope, beyond all hope, they can get some research money to find out why these illnesses are so devastating to all of us.

They ask one thing in return.

They ask to recruit others to the cause to sign petitions, write letters or just do what you can and if you're too disabled to do anything, ask someone else to help. If we could organize like the gay and lesbian community did for AIDS or like they did for MS it would an incredibly loud voice.  It is so powerful to have numbers of people clamoring for something to be done for them; to get answers and awareness. We have a huge percentage of the population that have been stricken with PTSD, Chronic Fatigue/ME or Fibromyalgia but instead of researching and putting a huge emphasis on it, a huge amount of money is spent on the latest pill for male erections.

I make light of it.
But it's true.

Please visit this website (put the cursor over website and you'll see the link) and read the letter that will be sent. The site also includes the twitter handles so you can tweet as often as possible the link to the letter so that you can bring awareness. We need to bond together because all of the "invisible illnesses" are in the line of fire.

What has happened to the chronic pain and fatigue community? We need to spread the word because we are in danger of our "syndromes" being labeled as psychogenic. We need to stop this in it's tracks. 

Please, even if it's from your bed, please let your feelings about this be known. It all has to do with insurance companies not wanting to pay out and if this can be "controlled" by cognitive behavioral therapy and a couple of antidepressants all the better. 

What will happen when they have their way?

They will shove a couple of antidepressants at us and send us on our way.

On our own and labeled again.

And once again it's all in our head.

And the best part?

They won't have to pay out to treat us.


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