Wednesday, May 12, 2010


I feel like roadkill.
Tired of being tired.

I went out today and drove across town to get information about the support groups for Fibromyalgia in Las Vegas. The drive bothered me more than I thought it would. Between the  Fibro and the appendix it kind of knocked me out. The group had a table at a supermarket in Henderson. I parked the car and walked in and looked around. I finally found the table at the other end of the supermarket. If I hadn't known it would be there I would have missed it.  Honestly, I thought there would be more fanfare. I'm used to doing things on a grand scale. I'd be pulling people in talking about this disease. I liked their location and hopefully a lot of people stopped and asked for information. I'll be going tomorrow to the luncheon and meeting all sorts of people that are suffering with this invisible syndrome. I need to get out of my house more, so this will be a good thing.

I'm a little unsure of meeting new people. Weird, because that's all I've done in my career. Being in sales everyone was new. Every meeting was an encounter and I loved getting to know people. I don't know what this has done to me. Is it because I've been so isolated for so long? Maybe that's it. Part of me is afraid I'll need to give something and I have nothing to give right now.  I'll just wing it and go see what is up. Maybe I can offer suggestions........well, maybe I shouldn't do that. I have a way of taking over so I'll be a good girl and keep my mouth shut.

Am I rambling?

My stomach wasn't hurting nearly as bad today. This appendix thing has really knocked my lights out and it was nice not to walk hunched over like a little old lady.

So what did I do?

I decided to change my sheets and do laundry. Then I vacuumed the floor. That was it. Done for the day and I got back in bed. Geez, you'd think I'd run a marathon. What is it going to take for me to have a normal day without feeling totally wiped out? My niece said it will take awhile for the incisions to heal from the operation. Am I rushing it? Okay, but I still can't get through a day without resting every hour. 

So I'm back in bed.

Feeling like roadkill.

Say goodnight Gracie.


  1. Hi Rose,
    You find these links interesting and helpful

    Interesting research on biomarkers

    Dr. Bateman
    A research team from University of Newcastle published a paper titled, "Abnormalities in pH handling by peripheral muscle and potential regulation by the autonomic nervous system in chronic fatigue syndrome" in the Journal of Internal Medicine. Senior author Julia L. Newton has published a number of quality papers describing autonomic nervous system (ANS) abnormalities in CFS. In this current publication, her team attempts to understand some of the mechanisms that may be responsible for post-exertion physical fatigue and ANS abnormalities that are common in CFS patients. Based on knowledge of exercise physiology obtained from healthy individuals, they determined how muscles in 16 CFS patients handled protons, compared to eight sex- and age-matched controls. Here is what they found.

    Where do you get your great pics???

    There is a lot of research going on to create bio markers for Fibro and CFS

  2. I am happy to find your blog. I, too, suffer from fibromyalgia. It kicked into high gear after a hysterectomy I had last June. Our LTD carrier is Prudential. They have repeatedly denied my claim - first for no diagnosis, then because pain is subjective then again because they have no diagnosis?? Every time their 45 days closes in, they ask for something new. I was on unpaid leave from August until mid-April, at which time I was basically forced to return due to financial reasons. Now that I am back it is getting worse again. I am unable to take my meds properly because I can't function in a work environment while taking them. Since I can't take them properly, the pain is worse and I have to rely on crying in the bathroom and taking vicodin when I get home. I have also been diagnosed with a sleep condition for which I am using a CPAP machine - sometimes it helps, sometimes it doesn't. My whole body gets do tight, at times it feels like the skin on my hands feet and back are so tightly stretched that I can hardly move. It is not just me suffering, my husband has had to take on many extra duties that I simply don't have the energy to do and my children don't have the same mom they once had. I cannot be active with them as I once was - sadly, most of my time at home is spent on the couch or in bed. I am awaiting a final appeal decision from Prudential and am hoping for the best (but experience with them tells me to expect the worst). When I was able to undergo proper treatment (meds, PT and myofacial release) I felt like I was getting at least part of my life back. Now I'm not sure where to turn - they have me stuck between a rock and a hard place.

  3. Look up Scott Davis. I'm not sure where you are but he may be able to help you. He's an attorney that specializes in LTD claims and knows Fibro well. Maybe he can help you. I know this rock and a hard place. I live there! Want to be neighbors???
    This really sucks, I know. My email is if you want to email me. This comment thing.....I'm not sure if I reply right.......
    Feel better!!

  4. This FM site is in Canada that has could information on it. Even though Canadian Law is different in some respects you can see how judges behave and information that demand in order for someone to be awarded disability.

    Hope it helps!

  5. Hi my friend,

    Everytime I read your blog I swear we are so fibro sisters! You are so much like me, saying what I am thinking!!! This post is me to a heart goes out to you and what you are going thru....!!!
    I keep hoping for a month of good days...I would even take 2 weeks of good days. I know they are out there for us!!!!!


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